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June 6, 2026American Journal of HematologyOpen Access

Exploring the Burden on Patients Living With and Receiving Treatment for Immune Thrombocytopenia ( ITP ): Patient and Physician Perceptions From the ITP World Impact Survey (I‐ WISh ) 2.0

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Authors

NCNichola CooperJBJames BusselWGW G Ghanima

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Overview

Randomized trial explores treatment-related burdens in immune thrombocytopenia, highlighting patient preferences.

Key Points

  • This research aims to understand patients' and physicians' perceptions of the impact of immune thrombocytopenia (ITP) symptoms and treatments.
  • Surveyed 1018 patients and 431 physicians across 15 countries
  • Characterized effects of ITP on daily activities, emotional wellbeing, and treatment satisfaction
  • Analyzed alignment between patient and physician perceptions on symptoms and treatment goals.
  • One-third of patients reported a high impact of ITP on daily activities and social life
  • 54% reported high emotional wellbeing impact; 48% of patients cited fatigue as problematic versus 29% of physicians
  • Two-thirds of patients preferred limiting time on treatment, despite most being satisfied with existing options.

Cite This Study

Cooper et al. (2026) studied this question.

synapsesocial.com/papers/6a23bb7971a5da9775e76efchttps://doi.org/10.1002/ajh.70379
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Patient survey in immune thrombocytopenia (<scp>ITP</scp>): Identifying unmet needs related to treatment and disease control in patients living in the United States2025 · 2 citations
  2. 2A Qualitative Study on Patient Experience with Signs, Symptoms, and Daily Impacts of Immune Thrombocytopenia2025
  3. 3Clinician’s knowledge and awareness of patient-reported outcomes in immune thrombocytopenia: Results of a national survey (ITP NET, GIMEMA Working Group Anemia and Thrombocytopenia)2025
  4. 4A Single-Center Experience of Immune Thrombocytopenic Purpura: Disease Characteristics, Treatment Options, Response to Treatment, and Side Effects2025 · 1 citations
  5. 5The Immune Thrombocytopenia Treatment Landscape: A Focus on Patient Perspectives and Unmet Clinical Needs2024