Key result
Diabetes stigma harms well-being and self-management, with 100% of patients reporting anxiety and shame.
Why the study?
Although diabetes stigma is commonly reported, little is known about how adults with type 1 or type 2 diabetes in Appalachian Ohio experience stigma and how it affects their daily life and health.
Diabetes stigma is a pervasive psychosocial issue that negatively influences emotional well-being, social interactions, and self-management among adults with diabetes in Appalachian Ohio.
May warrant stigma screening in Appalachian diabetes care; leaves open generalizability and need for prospective intervention trials.
Introduction and Objective: Diabetes stigma refers to stereotypes, negative judgments, labels, and prejudices directed towards people living with the condition. Although diabetes stigma is commonly reported, little is known about how adults with type 1 or type 2 diabetes in Appalachian Ohio experience stigma. The purpose of this study was to explore how diabetes stigma affects the daily life and health experiences of individuals in Appalachian Ohio. Methods: Thirty adults residing in Appalachian Ohio with type 1 or type 2 diabetes participated in semi-structured interviews. Interview questions examined perceptions of stigma, its impacts on self-management and emotional well-being, and sources of stigma. Two researchers coded the interviews, resolved discrepancies, and conducted thematic analysis using NVivo. Results: Four themes emerged: The Emotional Impact of Stigma: Stigma adversely affected emotional well-being, with all participants reporting worry or anxiety and feeling shame or guilt related to their diabetes. The Social Impact of Stigma: Stigma influenced interpersonal interactions, with two-thirds of participants avoiding diabetes disclosure, though many described supportive relationships with their healthcare professionals. Stigma’s Impact on Self-Management: Half of participants preferred to perform self-care behaviors discreetly to avoid unwanted attention or judgment. Perceived Sources of Stigma: Nearly all participants identified social communication and expectations as sources of stigma, with media portrayals further contributing to diabetes stigma. Conclusion: These findings show diabetes stigma is a pervasive psychosocial issue that influences emotional well-being, social interactions, and self-management among adults with diabetes in Appalachian Ohio, highlighting the need for stigma-informed education and care. Disclosure K.M. Whistler: None. E.A. Beverly: None.
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WHISTLER et al. (2026) studied Type 1 or type 2 diabetes (n=30). Diabetes stigma was evaluated on Perceptions of stigma, its impacts on self-management and emotional well-being, and sources of stigma. Diabetes stigma adversely affected emotional well-being, social interactions, and self-management, with 100% of participants reporting worry or anxiety and feeling shame or guilt.
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