What does this research mean for the field?

Providing genetic counseling to incarcerated patients involves distinct systemic and psychosocial challenges that alter standard counseling dynamics, highlighting a critical need for specialized training and formal practice guidelines. Novelty: ClaimNovelty.INCREMENTAL. Consensus alignment: ConsensusAlignment.NEUTRAL.

What question did this study set out to answer?

The study aims to explore the experiences of genetic counselors working with incarcerated patients and identify barriers to care.

June 8, 2026Journal of Genetic CounselingOpen Access

A qualitative investigation of genetic counselors' experiences working with incarcerated patients

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Authors

HFHaley Fuoco EFElena R. Fisher RPRebekah Pratt

Discussion

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Overview

Qualitative investigation investigates genetic counselors' experiences and barriers in caring for incarcerated individuals, highlighting the need for more training.

Key Points

The study aims to explore the experiences of genetic counselors working with incarcerated patients and identify barriers to care.
Qualitative study design involving semi-structured interviews with ten genetic counselors from five clinical specialties.
Participants were recruited via the National Society of Genetic Counselors in 2022.
Data analyzed using reflexive thematic analysis to identify key themes in counselors' experiences.
Counselors reported significant challenges in navigating the prison system, impacting the depth of counseling provided.
Emotional responses varied among counselors regarding their experiences with incarcerated patients, highlighting the need for targeted training.
Participants expressed the need for formal guidelines to enhance genetic counseling for the incarcerated population.

Cite This Study

Fuoco et al. (2026) studied this question.

synapsesocial.com/papers/6a265ce5ad53cfb9357c620c https://doi.org/10.1002/jgc4.70228

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June 8, 2026Journal of Genetic CounselingOpen Access

A qualitative investigation of genetic counselors' experiences working with incarcerated patients

View Full Paper

Ask AI

Bookmark

Authors

HFHaley Fuoco EFElena R. Fisher RPRebekah Pratt

Discussion

Member takes

Overview

Qualitative investigation investigates genetic counselors' experiences and barriers in caring for incarcerated individuals, highlighting the need for more training.

Key Points

The study aims to explore the experiences of genetic counselors working with incarcerated patients and identify barriers to care.
Qualitative study design involving semi-structured interviews with ten genetic counselors from five clinical specialties.
Participants were recruited via the National Society of Genetic Counselors in 2022.
Data analyzed using reflexive thematic analysis to identify key themes in counselors' experiences.
Counselors reported significant challenges in navigating the prison system, impacting the depth of counseling provided.
Emotional responses varied among counselors regarding their experiences with incarcerated patients, highlighting the need for targeted training.
Participants expressed the need for formal guidelines to enhance genetic counseling for the incarcerated population.

Cite This Study

Fuoco et al. (2026) studied this question.

synapsesocial.com/papers/6a265ce5ad53cfb9357c620c https://doi.org/10.1002/jgc4.70228

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