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Evaluating a Pediatric to Adult Care Transition Program for Adolescents and Young Adults With Sickle Cell Disease: A Program Assessment at Duke University

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Examine transition-readiness practices for adolescents and young adults with sickle cell disease in a pediatric clinic setting.
Program evaluation using policy review and ASH Transition Readiness Assessment Tool data
Evaluation of current transition practices via the Got Transition Framework
Strong disease knowledge (M=3.26/4) and medication knowledge (M=3.33/4) observed
Low confidence in scheduling appointments (M=2.24/4) and understanding insurance (M=1.71/4)
Identified variability in transition readiness and gaps in standardized assessment frequency and documentation

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Program assessment reveals gaps in transition readiness for adolescents and young adults with sickle cell disease, suggesting areas for improvement.

Jones et al. (2026) studied this question.

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Program assessment reveals gaps in transition readiness for adolescents and young adults with sickle cell disease, suggesting areas for improvement.