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June 13, 2026Neurology

Loss of Productivity, Seizure Worry, and Patient and Caregiver Quality of Life Associated with Prolonged Seizures: Results from a Global Real-world Point-in-time Study (P4-11.008)

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Authors

ETE TrinkaMWMatthew WalkerRKReetta Kalviainen

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Overview

Global real-world study assesses quality of life and productivity loss in patients with epilepsy and caregivers.

Key Points

  • This study aims to evaluate the impact of prolonged seizures on the quality of life and productivity in patients with epilepsy and their caregivers.
  • Conducted a global point-in-time study focusing on patients aged ≥12 years with epilepsy.
  • Included individuals on stable antiseizure medication and experiencing prolonged seizures within the last year.
  • Collected data on productivity loss, seizure worry, and quality of life.
  • Patients experienced significant productivity loss due to prolonged seizures, affecting their daily routines.
  • Caregivers reported increased worry about seizures and decreased quality of life.
  • Overall, prolonged seizures negatively impacted both patient and caregiver well-being.

Cite This Study

Trinka et al. (2026) studied this question.

synapsesocial.com/papers/6a2cf3d6faef96ed7f056414https://doi.org/10.1212/wnl.0000000000215170
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Trajectories of quality of life, anxiety and depressive symptomatology, and health‐related work productivity after first seizure events2026
  2. 2The impact of epilepsy on quality of life: Findings from a European survey2023 · 134 citations
  3. 3Prevalence of sleep and mood disorders in people with epilepsy: A single‐Center self‐reported assessment2026
  4. 4Impact of Epilepsy on Productivity and Quality of Life2025
  5. 5Before It's Too Late: Recognizing the Impact of Seizures and Risk Factors for Late-Onset Epilepsy in Dementia and Mild Cognitive Impairment2025