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June 15, 2026Journal of Clinical and Translational ScienceOpen Access

Preferences of Research Participants with Experience Receiving Individual Results for Future Return of Results

Paul S. Appelbaum Sheila M. O’Byrne Zirui Zhang Wendy K. Chung George Hripcsak Krzysztof Kiryluk Chunhua Weng Shing M. Lee Nancy Green

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Key Points

This research aims to understand the preferences of participants regarding the return of individual research results.
Qualitative interviews conducted with participants having previous experience receiving results.
Analysis of participant feedback on preferred formats and timing for receiving individual results.
Participants expressed a strong preference for receiving results in a timely manner.
Many participants preferred personalized feedback over generic summaries.
Concerns about understanding results and implications were commonly reported.

Implication

Qualitative exploration of participant preferences for receiving individual results in research, indicating the importance of tailored communication.

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Cite This Study

Appelbaum et al. (2026) studied this question.

synapsesocial.com/papers/6a34dd8765a5b0777af2d2db https://doi.org/10.1017/cts.2026.10768

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