Investigation of the Lived Experience of Family Members of a Person With Intellectual Disabilities Who Presents With Pica

Background Pica, the persistent ingestion of non‐nutritive substances, poses significant health risks for individuals with intellectual disabilities yet remains under‐recognised, particularly in home settings. Method This qualitative study explored the lived experiences of family members supporting a person with intellectual disabilities who engages in pica. Using Interpretative Phenomenological Analysis, four in‐depth, semi‐structured interviews were conducted with primary caregivers. Results Five superordinate themes were identified: Living on High Alert , Systemic Failures in Care , Emotional Erosion , Resourceful Parenting , and The Silence Around Pica . Caregivers described constant vigilance, emotional exhaustion, and the strain of managing life‐threatening behaviours with little professional input. They also demonstrated creativity and resilience while fulfilling multiple roles as carers, advocates, and problem‐solvers. Conclusions Findings highlight a profound gap between the severity of pica and the adequacy of professional responses, underscoring the need for increased awareness, training, and specialist support.