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June 20, 2026Haemophilia

Utilisation and Perceived Value of Genetic Counsellors Within US Haemophilia Treatment Centres

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Authors

CCCaylynn CarlsSGSumedha GhateSDStefanie Dugan

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Overview

Survey assesses genetic counselling services in haemophilia centres, indicating the need for better integration of genetic counsellors.

Key Points

  • The study aimed to evaluate the role and perceived value of genetic counsellors in haemophilia treatment centres in the US.
  • Survey sent to 396 HTC providers with 115 responses (45.6% participation rate).
  • Responses stratified by level of GC engagement.
  • Data analyzed regarding the involvement and value perceptions of genetic counsellors.
  • 34.9% of respondents reported no GC involvement in HTCs.
  • 98% of GC-engaged respondents agreed on the unique value of GCs compared to 62% of non-GC-engaged respondents (p=0.001).
  • Integration of GCs noted to enhance optimal patient care in HTCs.

Cite This Study

Carls et al. (2026) studied this question.

synapsesocial.com/papers/6a362f11db0793dc1a5368efhttps://doi.org/10.1111/hae.70340
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Also Consider

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