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June 20, 2026Journal of the International Association of Providers of AIDS Care (JIAPAC)Open Access

Retaining Versus Engaging Youth in HIV Care: Perspectives From a Qualitative Study among Youth Living With HIV and Their Care Providers in Kenya and Uganda

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Authors

JJJason Johnson‐PeretzAOAngeline OnyangoCACecilia Akatukwasa

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Overview

Qualitative study explores perspectives on HIV care engagement among youth living with HIV, highlighting the need for differentiation in care approaches.

Key Points

  • This research examines youth living with HIV's perspectives on challenges and factors influencing HIV care engagement and retention.
  • Conducted semistructured, in-depth interviews with 113 adolescents and young adults living with HIV
  • Interviews evaluated factors influencing clinic attendance and HIV care retention during a 2-year intervention
  • Participants were purposively sampled for diversity in sex, life stage, and HIV care status
  • Youth defined HIV care incorporating social factors like familial support and respectful providers
  • Distinguished between retention in care (keeping appointments) and engagement in care (commitment to health with family and providers)
  • Findings indicate a need for differentiated strategies in HIV care approaches based on youth perspectives

Cite This Study

Johnson‐Peretz et al. (2026) studied this question.

synapsesocial.com/papers/6a3632d2db0793dc1a53954dhttps://doi.org/10.1177/23259582261457320
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