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June 29, 2026BMC Health Services Research0 citationsOpen Access

Healthcare Professionals’ Perceptions of Patient and Caregiver Participation

Primary and secondary patient participation - a qualitative study of healthcare professionals’ perceptions and experiences

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Authors

TDTherese Scott DuncanCWCarolina WannhedenMHMaria Hägglund

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Overview

Qualitative study explores healthcare professionals' views on patient participation and organizational challenges.

Key Points

  • The study aims to understand healthcare professionals' perceptions and experiences regarding patient and caregiver participation.
  • Inductive thematic analysis of qualitative data from a national web survey in Sweden.
  • Survey included 279 participants, with 247 providing open-ended responses.
  • Explored attitudes toward patient participation and collaborative practices.
  • Identified two overarching themes: primary participation at micro levels and secondary participation at macro and meso levels.
  • Healthcare professionals valued informed patients but faced challenges like misinformation, workload, and health inequities.
  • Structural barriers, lack of support, and limited resources hindered secondary participation despite its perceived benefits.

Cite This Study

Duncan et al. (2026) studied this question.

synapsesocial.com/papers/6a420b08f91bb43ea9192362https://doi.org/10.1186/s12913-026-15039-3
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