What question did this study set out to answer?

This review aims to synthesize and evaluate the existing meta-research surrounding the engagement of lived experience and caregivers in mental health and substance use health research.

July 2, 2026Health ExpectationsOpen Access

Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis

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This review aims to synthesize and evaluate the existing meta-research surrounding the engagement of lived experience and caregivers in mental health and substance use health research.
Systematic searches conducted in PsycInfo, MEDLINE, CINAHL, and Web of Science.
Fifty-seven articles were included based on criteria of meta-research on engagement in mental health and substance use over the past decade.
Data extraction and qualitative synthesis were performed by two independent reviewers.
Meta-research highlights positive experiences and challenges in engagement contexts.
Describes various approaches, new tools, and opportunities for enhancing engagement.
Identifies the need for improving engagement processes, structural supports, and logistics.

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Implication

Scoping review synthesizes meta-research on caregiver and lived experience engagement in mental health, suggesting areas for improvement.

Cite This Study

Hawke et al. (2026) studied this question.

synapsesocial.com/papers/6a45fffc9ed1343031310368 https://doi.org/10.1111/hex.70733

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Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis

Key Points

Discussion

Implication

Cite This Study

Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis

Key Points

Discussion

Implication

Cite This Study

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