Key result
NHLBI workshop outlines strategic research priorities to improve pediatric and congenital heart disease outcomes.
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Highlights key research opportunities and challenges in pediatric and congenital cardiovascular disease to improve outcomes across the lifespan.
The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.
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Opotowsky et al. (2022) conducted a review in Pediatric and congenital cardiovascular disease. A National Heart, Lung, and Blood Institute workshop identified key research opportunities in pediatric and congenital cardiovascular disease to improve outcomes across the lifespan.
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