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This research addresses the process of obtaining consent for linking various data sources to enrich a longitudinal study.

July 9, 2026Wellcome Open ResearchOpen Access

Obtaining Consent for Linkage to Health, Education and Other Data Sources in a Longitudinal UK Research Cohort.

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This research addresses the process of obtaining consent for linking various data sources to enrich a longitudinal study.
Described the use of a blended model for participant consent in the Avon Longitudinal Study of Parents and Children (ALSPAC).
Employed direct responses and an independently approved method for indirect permission.
Outlined the types of linked datasets used in conjunction with existing data from the study.
ALSPAC successfully obtained necessary permissions to link health, education, and lifestyle data.
The combination of direct and indirect consent strategies effectively addressed ethical considerations.
All linked datasets, including biosamples and multi-omics, are available for research use.

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Data linkage reveals how consent is obtained for research in a longitudinal UK cohort, suggesting better ethical practices.

Mummé et al. (2026) studied this question.

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