Correct identification of one's congenital heart disease defect was significantly associated with certain outcomes (P<0.001), though associations with other health outcomes were mixed.
Cross-Sectional
Yes
Does correct self-identification of CHD defect improve self-reported health outcomes and continuity of care in adults with CHD?
Improving a patient's knowledge of their specific congenital heart defect may be an effective strategy for maintaining continuity of care.
p-value: p=< 0.001
BACKGROUND: Knowledge of one's defect is fundamental in optimising outcomes in adults with CHD. We aimed to assess factors associated with defect knowledge and how that knowledge may impact outcomes. METHODS: We performed a cross-sectional cohort study of adults with CHDs aged 18-82 years with intervention between 1982 and 2003 at one of 11 US centres in the Pediatric Cardiac Care Consortium. Participants completed a survey in 2021-2023 regarding disease knowledge and various health and quality of life outcomes. After comparing participants' self-identification of their defect to that recorded in the medical record, we identified demographic factors associated with correct identification and assessed the association of correct identification with outcomes. RESULTS: < 0.001) but was mixed for other outcomes. CONCLUSIONS: Improving a person's knowledge of their CHD may be an effective strategy for maintaining continuity of care.
Oster et al. (Fri,) conducted a cross-sectional in Congenital Heart Disease (CHD). Correct identification of CHD defect vs. Incorrect identification of defect was evaluated on Continuity of care and other health outcomes (p=< 0.001). Correct identification of one's congenital heart disease defect was significantly associated with certain outcomes (P<0.001), though associations with other health outcomes were mixed.