A 1-hour nurse-led transition intervention significantly improved self-management TRAQ scores at 6 months compared to usual care (3.59 vs 3.16; p=0.048) in youth with heart disease.
RCT (n=58)
Systematic allocation by week of attendance
Does a 1-hour nurse-led teaching session improve transition readiness and cardiac knowledge in adolescents with congenital heart disease or cardiomyopathy?
A brief nurse-led educational intervention significantly improves self-management skills and cardiac knowledge in adolescents with heart disease transitioning to adult care.
Absolute Event Rate: 3.59% vs 3.16%
p-value: p=0.048
OBJECTIVES: Adolescents with heart disease have complex health needs and require lifelong cardiology follow-up. Interventions to facilitate paediatric to adult healthcare transition are recommended, although outcomes are unknown. We sought to determine the impact of a transition intervention on improving knowledge and self-management skills among this population. METHODS: We conducted a clinical trial of 15-17 year olds with moderate or complex congenital heart disease (CHD) or cardiomyopathy. Participants were systematically allocated to either usual care (controls) or a 1 h nurse-led one-on-one teaching session about their heart. Allocation was determined by week of attendance in the cardiology clinic. The primary outcome was change in Transition Readiness Assessment Questionnaire (TRAQ) score at 6 months, possible scores ranging from 1 (low) to 5 (optimal). Cardiac knowledge (MyHeart score, range 0-100) was a secondary outcome. Analysis was intention to treat. RESULTS: Of 58 participants (48% female), 52 had CHD and 6 had cardiomyopathy. 27 were allocated to the intervention group; 3 declined the intervention and received usual care. When comparing the intervention group with the usual care group at 6 months postintervention, the mean self-management TRAQ score was 3.59 (±0.83) vs. 3.16 (±1.05), respectively (p=0.048, adjusted for baseline score); the mean self-advocacy TRAQ score was 4.38 (±0.56) vs. 4.01 (±0.95) (p=0.18) and the mean MyHeart score was 75% (±15) vs. 61% (±25) (p=0.019). CONCLUSIONS: A 1 h nurse-led transition intervention resulted in a significant improvement in self-management and cardiac knowledge scores. An educational intervention should be routine for youth with congenital or acquired heart disease. TRIAL REGISTRATION NUMBER: NCT01286480.
Mackie et al. (2014) conducted an RCT in Moderate or complex congenital heart disease or cardiomyopathy (n=58). Nurse-led one-on-one teaching session vs. Usual care was evaluated on Change in Transition Readiness Assessment Questionnaire (TRAQ) score at 6 months (p=0.048). A 1-hour nurse-led transition intervention significantly improved self-management TRAQ scores at 6 months compared to usual care (3.59 vs 3.16; p=0.048) in youth with heart disease.
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