Key result
Complex congenital heart disease was associated with lower paid job participation compared with mild disease (59% vs 76%), with type of CHD independently predicting employment (OR 4.8).
Why the study?
Do adults with complex congenital heart disease have reduced job participation and more career-related problems compared to those with mild CHD or the general population?
Cross-Sectional (n=156)
No
Do adults with complex congenital heart disease have reduced job participation and more career-related problems compared to those with mild CHD or the general population?
Odds Ratio: 4.8 (95% CI 1.2–19.6)
Absolute Event Rate: 59% vs 76%
Adults with complex congenital heart disease experience significantly reduced job participation and more career-related problems compared to those with mild disease and the general population, highlighting the need for targeted career counseling.
Adults with complex CHD face employment challenges warranting counseling; leaves open whether targeted interventions improve participation.
OBJECTIVE: To evaluate job participation, career-related problems, and actual job problems in adults with complex congenital heart disease (CHD) compared with adults with mild CHD and reference groups. DESIGN: Cross-sectional study. SETTING: Patients were randomly selected from the archives of the Department of Pediatric Cardiology, Leiden University Medical Center, Leiden, the Netherlands. PATIENTS AND MAIN OUTCOME MEASURES: In total, 76 patients with complex CHD and 80 with mild CHD (age range, 17-32 years) completed a self-reported questionnaire on employment and handicaps, with reference data available (response rate, 70%). RESULTS: In the study groups, 45 (59%) of 76 patients with complex CHD had a paid job compared with 61 (76%) of 80 patients with mild CHD. Patients older than 25 years with complex CHD had significantly lower job participation (64%) than the general population (83%). Multiple logistic regression showed that type of CHD and level of education were significantly and independently related to job participation (odds ratio, 4.8; 99% confidence interval, 1.2-19.6; and odds ratio, 4.7; 99% confidence interval, 1.3-17.2, respectively). Of the 76 patients with complex CHD, 42 (55%) experienced disease-related career problems, in contrast to only 1 patient with mild CHD. Both CHD groups had more job-related mobility handicaps than did the reference group. However, in the mild CHD group, handicaps could be attributed to additional noncardiac diseases. CONCLUSIONS: Patients with complex CHD have reduced job participation compared with patients with mild CHD and the general population. Many receive disability benefits or experience career problems or job handicaps. Career counseling focusing on physical abilities and level of education may help prevent or reduce these job-related problems.
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Kamphuis et al. (2002) conducted a cross-sectional in Congenital heart disease (n=156). Complex congenital heart disease vs. Mild congenital heart disease was evaluated on Paid job participation (OR 4.8, 95% CI 1.2-19.6). Complex congenital heart disease was associated with lower paid job participation compared with mild disease (59% vs 76%), with type of CHD independently predicting employment (OR 4.8).
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