Key result
A survey of 26 European centres found that while 81% reported having a transition plan for rare cardiomyopathies, only 42% implemented it for all patients and 19% had no formal protocol.
Why the study?
Transition of paediatric patients with inherited and rare cardiomyopathies to adult services varies significantly across healthcare systems, requiring assessment of current transition practices and multidisciplinary management.
Cross-Sectional (n=26)
Yes
A survey of European specialized centers reveals significant variability and unmet needs in the transition and multidisciplinary care of patients with inherited and rare cardiomyopathies.
Implementation of transition plans for rare cardiomyopathies remains inconsistent; leaves open the need for standardized protocols and outcome studies.
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Monda et al. (2025) conducted a cross-sectional in Inherited and rare cardiomyopathies (n=26). Survey on care transition and multidisciplinary management was evaluated on Presence and implementation of transition protocols and multidisciplinary care. A survey of 26 European centres found that while 81% reported having a transition plan for rare cardiomyopathies, only 42% implemented it for all patients and 19% had no formal protocol.
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