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July 26, 2026Allergy Asthma and Clinical ImmunologyOpen Access

Optimizing conversations on treatment management in hereditary angioedema: healthcare professional and patient perspectives on long-term prophylaxis and shared decision-making

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Authors

MMMarkus MagerlEAEmel Aygören-PürsünJGJens Greve

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Overview

This investigation explores healthcare professional and patient perspectives on long-term prophylaxis and shared decision-making in hereditary angioedema management, suggesting communication...

Key Points

  • The aim is to explore HCP–patient conversations on managing hereditary angioedema and identify barriers to shared decision-making.
  • Interviews with 10 healthcare professionals and 8 patients in Germany, focusing on long-term prophylaxis discussions.
  • Simulated patient consultations led by HCPs to assess treatment recommendations.
  • Qualitative analysis of barriers to effective shared decision-making.
  • Most HCPs recommended long-term prophylaxis based on high attack frequency and quality of life impact.
  • Patients initiated on long-term prophylaxis reported improved quality of life and reduced fear of attacks.
  • Key barriers included time constraints, lack of clear guidelines for shared decision-making, and insufficient patient-friendly information.

Cite This Study

Magerl et al. (2026) studied this question.

synapsesocial.com/papers/6a65a962d3aea3239cd794achttps://doi.org/10.1186/s13223-026-01049-7
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Androgen transition and management of hereditary angioedema long-term prophylaxis in real life: a single-center case series2024 · 2 citations
  2. 2Barriers and promoters to adapting research findings to clinical care in hereditary angioedema in the United States: A qualitative study2025
  3. 3Prophylaxis in hereditary angioedema: a United Kingdom Delphi consensus2024 · 5 citations
  4. 4An international survey assessing the effects of the duration of attack-free period on health-related quality of life for patients with hereditary angioedema2024 · 3 citations
  5. 5A Treat-to-Target approach in hereditary angioedema: expert consensus from a European committee2026