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White paper outlines critical research, education, and care access priorities for inherited bleeding disorders in newborns.
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Haemophilia and inherited bleeding disorders in newborns and their carrier mothers pose unique challenges. The pattern of bleeding and the causes and risk factors for bleeding are decidedly different than an older child or an adult with haemophilia/inherited bleeding disorder. This document outlines the needs for further research and education, summarizes the state of the art background information and provides guidance regarding research, education and access to care issues in this population.
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KULKARNI et al. (2006) conducted a review in Haemophilia and inherited bleeding disorders. This white paper summarizes background information and outlines research, education, and care access needs for newborns with inherited bleeding disorders and their carrier mothers.
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