P498: Clinical treatment patterns and outcomes of sickle cell from the Arkansas newborn screening long term follow-up database study: 2011-2023

This is the authors' abstract. We don't add key points for this paper.

Sickle cell disease (SCD) is one of the most common genetic diseases, affecting nearly every organ, causing disability and reduced life expectancy. Newborn screening (NBS) is a successful public health initiative identifying SCD and other hemoglobinopathy disorders in infants to facilitate early treatment and management. A linked comprehensive surveillance system for SCD does not exist across programs in the United States (US), but collaborative efforts backed by agencies such as the Centers for Disease Control and Prevention and Centers for Medicare and Medicaid Services (CMS) are in place to generate population-based longitudinal public health surveillance to inform understanding of long-term outcomes.