Values, qualities and skills for mental health lived experience leadership in systems change in Australia

This study identifies and explores the values, qualities and skills that constitute mental health lived experience leadership, from the perspectives of emerging and accomplished lived experience leaders and allies. As part of lived experience led participatory action research, multiple qualitative methods were used: focus group discussions, online forums and an online qualitative survey, Participants included consumer and carer leaders from various urban, regional and rural settings. All data was coded and thematically analysed. Analysis of data showed the complexity of activity and values, qualities and skills perceived as important features of lived experience leadership. These features are described as: (1) stands up and speaks out, (2) lived experience lens and positioning, (3) champions justice, (4) creates and nurtures safe and connected spaces, (5) leads and inspires change, and (6) being strategic in mobilising. This study extends understandings of lived experience leadership in guiding development of the peer workforce, systems advocacy and community mental health initiatives.