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PURPOSE: The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS). METHOD: Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective. RESULTS: Participants experienced ownership, active participation and empowerment. Participants' fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports. CONCLUSION: Participants' experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.
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Twomey et al. (2010) studied this question.
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