Modeling the future of cancer registration and research: The Martinique Cancer Data Hub Platform

T he number of Clinical Data Research Networks (CDRN) focused on creating large collections of data from multiple digital sources, has vastly increased in the last few years.These CDRN are particularly relevant in outlying island regions, where they make it possible for those involved to communicate and contribute, thereby facilitating remote collaborations, despite the physical distance.We propose an innovative and robust organizational networking platform with advanced digital tools and strong partners, to boost a collaborative medical network of Public Health and Health Surveillance, in close connection with clinical research, and population-based cancer registries.A multifunctional Information and Communication Technology (ICT) platform is proposed.This platform will provide institutions and health care professionals with a "Cancer Data Hub", which will offer a wide range of accurate cancer data (patterns of cancer care, quality of life, onco-pharmaco-epidemiology…), fostering collaborative and innovative public health research activities (eg, observational studies in real life practice and clinical trials).Blockchain modelization will be adapted with interconnected workpackages in the area of cancer.A completely secure environment, with powerful, simplified interfaces for software and hardware will be created, with interoperability of interfaces, databases managed in Big-Data, e-learning, research and a social network interface for online access.Development of innovative electronic tools is also ongoing for patientreported outcomes.This platform addresses the challenges that need to be resolved in the Caribbean area, with a view to improving overall quality of life and survival, by increasing capacity to implement telemedicine technologies and health care tools, also with a focus on research.