Grandparents of Children with Autism: A Review with Recommendations for Education, Practice, and Policy

One in 166 grandparents will become grandparent to a child with autism. A review of empirical studies suggests that these grandparents experience significant role confusion. They provide the autistic child's parents—who are more likely to be depressed, single, or divorced—with both burden (e.g., conflict regarding behavioral symptoms) and emotional and instrumental support (e.g., childcare; financial assistance; advocacy). Unique stressors of autism upon families include social isolation and financial burden. Custodial grandparents face additional stressors. Opportunities for education, practice, and policy that are designed to help grandparents redefine their role, share in the diagnosis and treatment of autism, and obtain social support are advanced.