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October 6, 2025BMC GeriatricsOpen Access

Living well with dementia: a qualitative interview study on family caregivers’ call for more person- and family-centered dementia support

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Authors

PBPia Bastholm‐RahmnerKSKatharina Schmidt‐MendeKMKarin Modig

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Overview

Qualitative interview study reveals substantial emotional strain and systemic support gaps among family caregivers of individuals with dementia, highlighting the urgent need for tailored care models.

Key Points

  • To describe the daily experiences and specific needs of family caregivers managing individuals with progressive dementia.
  • Conducted qualitative interviews with N=11 family caregivers in Sweden.
  • Evaluated qualitative transcript data using inductive thematic analysis.
  • Caregivers experienced emotional strain, physical exhaustion, and social isolation due to constant availability demands and evolving behavioral challenges.
  • Caregivers navigated high levels of responsibility for care decisions despite receiving limited information and guidance.
  • Caregivers reported reliance on formal home care and nursing homes that remain ill-equipped to manage the unique demands of dementia.

Cite This Study

Bastholm‐Rahmner et al. (2025) studied this question.

synapsesocial.com/papers/6a738ee18412e8bdfca72d95https://doi.org/10.1186/s12877-025-06429-z
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Also Consider

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