Balancing Identity, Inclusion and Engagement: Lessons from the Fearless Physical Activity Program for Adults with Congenital Heart Disease

Background This study explores the experiences and perceptions of adults with congenital heart disease (ACHD) who participated in the Fearless Physical Activity program, a community-based initiative aimed at promoting physical activity in CHD patients.Methods Using a qualitative research design, 27 participants were recruited and participated in semi-structured interviews.Results Thematic analysis revealed key factors influencing participation, including identity, social inclusion and program design.Discussion The study concludes that future ACHD-specific programs must address the diverse needs of ACHD patients, offering adaptable activities, consistent scheduling and clearer communication.Translation to Health Education Practice This study informs several Areas of Responsibility for health education specialists. Area I (Assessment) is addressed by identifying identity-related barriers to participation. Area II (Planning) highlights the need to co-design inclusive programs with ACHD patients. Area IV (Evaluation and Research) is supported through the use of qualitative methods to assess program impact. Lastly, Areas VI (Advocacy) and VII (Communication) emphasize the importance of clear messaging and advocating for inclusive, sustainable program funding.