Why the study?
Recommendations were needed as an appendix to the 2013 National cardiovascular programme to optimize medical care, transition from paediatric care, specialist training, research, and resource consolidation for adults with congenital heart disease in the Czech Republic.
Provides recommendations for organizing care for adults with congenital heart disease in the Czech Republic.
Facilitates improved ACHD management in the Czech Republic; extends prior recommendations into actionable national policy.
This paper was formed by the Expert committee for congenital heart disease (CHD) in adults – a division of Czech Society of Cardiology (CKS). It was designed as an appendix to National cardiovascular programme CKS created in 2013 and was based on Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of ‘Grown-up Congenital Heart Disease’ in Europe: a position paper of the Working Group on Grown-up Congenital Heart Disease of the European Society of Cardiology created in 2014 [1] . Aims of this paper are: To optimize medical care in all its aspects for adults with CHD in the Czech Republic, to facilitate easy transition between paediatric and adult medical care, to enable research in the field in order to create evidence based care, to support training of regional cardiologists and other specialists who are involved in monitoring adult patients with CHD, to help with communication with national institutions, to provide information for other medical workers and patients, to consolidate resources.
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Zatočil et al. (2018) studied Adult congenital heart disease. Specialized multidisciplinary adult congenital heart disease (ACHD) center care was evaluated. The Czech Society of Cardiology recommends concentrating care for adults with moderate-to-severe congenital heart disease into 3 specialized centers following at least 2,000 patients each.
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