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September 3, 2021Palliative MedicineOpen Access

Transitions between care settings for patients with advanced illness and their caregivers are characterized by uncertainty, biographical disruption, and a strong need for continuity of care and support.

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Why the study?

Transitions between care settings can be challenging for patients and family caregivers and are often an under-researched area of health care, including palliative care.

Population

Patients with advanced illness receiving specialist palliative care who underwent at least two transitions, and family caregivers

Design

Qualitative interview study using thematic analysis

Key result

Transitions between care settings for patients with advanced illness and their caregivers are characterized by uncertainty, biographical disruption, and a strong need for continuity of care and support.

Authors

PGPing GuoBirmingham City UniversityCPCathryn PintoUniversity of SouthamptonBEBeth EdwardsBangor University

Discussion

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Member takes

Overview

Highlights fragmented transitions for palliative patients and caregivers; leaves open optimal coordination strategies.

Structured PICO

P
Population
26 participants (15 adult patients and 11 family caregivers) with advanced illness receiving specialist palliative care who had undergone at least two transitions between care settings.
O
Outcome
Experiences of transitions between care settingspatient reported

Transitions between care settings for patients receiving specialist palliative care are characterized by uncertainty, biographical disruption, and a need for continuity and emotional support, highlighting the need for better communication and integration of care.

Limitations

  • Patients lacking capacity due to cognitive impairment or neurological conditions were excluded.
  • Participants were predominantly white British, limiting generalizability to other ethnicities.
  • Majority of patients had cancer (80%), limiting generalizability to non-cancer conditions.
  • Lack of representation in transitions from and to care homes.
  • Researchers might be a source of bias during data collection or analysis
  • Participants were not asked to verify the completeness and accuracy of interview transcripts due to time constraints

Cite This Study

Guo et al. (2021) studied Advanced illness receiving specialist palliative care (n=26). Transitions between care settings was evaluated on Experiences of transitions between care settings. Transitions between care settings for patients with advanced illness and their caregivers are characterized by uncertainty, biographical disruption, and a strong need for continuity of care and support.

synapsesocial.com/papers/6a7a10cc684c0941cf322dc5https://doi.org/10.1177/02692163211043371
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Transitions as experienced by persons in palliative care circumstances and their families – a qualitative meta-synthesis2026
  2. 2Examining the course of transitions from hospital to home-based palliative care: A mixed methods study2021 · 16 citations
  3. 3Experiences From Older Patients Regarding Their Transition From the Acute Hospital to Their Home: A Phenomenological Study2026
  4. 4TRANSFER‐I: Hospitalised Older Adults and Their Carers' Perspectives of the Transition Home: A Qualitative Study2025 · 2 citations
  5. 5User experience and care for older people transitioning from hospital to home: Patients’ and carers’ perspectives2017 · 107 citations