August 1, 2007Journal of Child Neurology
Consensus Statement for Standard of Care in Spinal Muscular Atrophy
Population
Patients with spinal muscular atrophy (SMA)
Design
Guideline
Authors
Discussion
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Member takes
Implication
Provides actionable multidisciplinary SMA guidelines now; extends consensus to inform standardized care and future research.
Key Points
- Consensus guidelines establish standardized multidisciplinary care across five clinical areas for spinal muscular atrophy patients grouped by three functional levels.
- More than 60 international experts and 12 core committee members achieved consensus on diagnostics, pulmonary care, and rehabilitation using a Delphi survey and meetings.
- A formal consensus process was conducted to address variable clinical outcomes, supporting future practice standards and valid measurement of treatment effects in trials.
Structured PICO
P
Population
Patients with spinal muscular atrophy (SMA)
I
Intervention
Multidisciplinary medical care guidelines covering diagnostic/new interventions, pulmonary, gastrointestinal/nutrition, orthopedics/rehabilitation, and palliative care
O
Outcome
Consensus on care areas according to 3 functional levels of the patients: nonsitter, sitter, and walker
This consensus statement establishes practice guidelines for the multidisciplinary clinical care of patients with spinal muscular atrophy across different functional levels.
Cite This Study
Wang et al. (2007) studied this question.