Key result
This is a study protocol for a feasibility before-after trial evaluating an early integrated palliative care intervention for patients with advanced chronic heart failure and chronic obstructive pulmonary disease; no results are reported.
Why the study?
Patients with CHF and COPD are amenable to integrated palliative care, but have limited access despite recommendations by healthcare organizations.
Does early integrated palliative care improve quality of life and satisfaction of care in patients with advanced chronic heart failure and COPD?
Does early integrated palliative care improve quality of life and satisfaction of care in patients with advanced chronic heart failure and COPD?
This protocol describes a feasibility study to evaluate whether early integrated palliative care can be implemented in acute cardiology and pulmonology wards and its potential impact on quality of life for patients with advanced heart failure and COPD.
BACKGROUND: Patients with chronic heart failure (CHF) and patients with chronic obstructive pulmonary disease (COPD) are amenable to integrated palliative care (PC); however, despite the recommendation by various healthcare organizations, these patients have limited access to integrated PC services. In this study, we present the protocol of a feasibility prospective study that aims to explore if an "early integrated PC" intervention can be performed in an acute setting (cardiology and pulmonology wards) and whether it will have an effect on (i) the satisfaction of care and (ii) the quality of life and the level of symptom control of CHF/COPD patients and their informal caregivers. METHODS: A before-after intervention study with three phases, (i) baseline phase where the control group receives standard care, (ii) training phase where the personnel is trained on the application of the intervention, and (iii) intervention phase where the intervention is applied, will be carried out in cardiology and pulmonology wards in the University Hospital Leuven for patients with advanced CHF/COPD and their informal caregivers. Eligible patients (both control and intervention group) and their informal caregivers will be asked to complete the Palliative Outcome Scale, the CANHELP Lite, and the Advance Care Planning Questionnaire at the inclusion moment and 3 months after hospital discharge. DISCUSSION: The present study will assess the feasibility of carrying out PC-focused studies in acute wards for CHF/COPD patients and draw lessons for the further integration of PC alongside standard treatment. Further, it will measure the quality of life and quality of care of patients and thus shed light on the care needs of this population. Finally, it will evaluate the potential efficacy of the "early integrated palliative care" by comparing against existing practices. TRIAL REGISTRATION: Current Controlled Trials ISRCTN24796028 (date of registration August 30, 2018).
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Siouta et al. (2019) studied Chronic heart failure (CHF) and chronic obstructive pulmonary disease (COPD) (n=100). Early integrated palliative care intervention ('My Wishes') vs. Standard care was evaluated on Feasibility of administering an early palliative care intervention, and changes in quality of life and satisfaction of care. This is a study protocol for a feasibility before-after trial evaluating an early integrated palliative care intervention for patients with advanced chronic heart failure and chronic obstructive pulmonary disease; no results are reported.
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