Why the study?
What are the symptom experiences and impacts on life in patients with pulmonary arterial hypertension?
What are the symptom experiences and impacts on life in patients with pulmonary arterial hypertension?
Qualitative interviews of PAH patients reveal significant symptom burden characterized by holding back and redefining life, highlighting the need for self-management interventions.
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May inform supportive counseling in PAH; leaves open whether addressing these themes improves outcomes.
McDonough et al. (2010) studied this question.
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