What question did this study set out to answer?

Examine how artist-led collaborative research integrates scientific knowledge, clinical care, and the lived experience of myotonic dystrophy.

August 16, 2026Medical HumanitiesOpen Access

Critical interloping, collaboration and entangling the ‘expert cultures’ of art, science and lived experience: Jacqueline Donachie’s artist-led research on myotonic dystrophy

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Examine how artist-led collaborative research integrates scientific knowledge, clinical care, and the lived experience of myotonic dystrophy.
Analyzed the collaborative artistic practice and methodologies of Jacqueline Donachie, focusing on dialogue, observation, ethnographic engagement, and aesthetic distillation.
Evaluated the conceptual intersection of genetic science, clinical perspectives, and patient/family experiential knowledge within the visual medical humanities.
Demonstrated that artist-led research foregrounds patient and family perspectives that are historically marginalized in genetic research and clinical practice.
Conceptualized the 'critical interloper' as a practitioner operating across diverse epistemic domains to transform how clinicians and scientists engage with complex conditions.

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Implication

Qualitative analysis demonstrates how artist-led inquiry bridges genetic science and lived experience in myotonic dystrophy, highlighting the value of critical interloping in medical humanities.

Cite This Study

Fiona Johnstone (2026) studied this question.

synapsesocial.com/papers/6a8178fcf2fb91fc834ac3c0 https://doi.org/10.1136/medhum-2026-013979

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Implication

Qualitative analysis demonstrates how artist-led inquiry bridges genetic science and lived experience in myotonic dystrophy, highlighting the value of critical interloping in medical humanities.

Critical interloping, collaboration and entangling the ‘expert cultures’ of art, science and lived experience: Jacqueline Donachie’s artist-led research on myotonic dystrophy

Key Points

Discussion

Implication

Cite This Study

Critical interloping, collaboration and entangling the ‘expert cultures’ of art, science and lived experience: Jacqueline Donachie’s artist-led research on myotonic dystrophy

Key Points

Discussion

Implication

Cite This Study

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