Development of a Patient Centered Outcome Set for Patients With Multiple Myeloma to be Used in Clinical Practice

To discuss outcomes with patients in daily clinical practice and to facilitate outcome comparisons between institutions, a standardized outcome set for patients with multiple myeloma (MM) is needed. The goal of this study was to align outcome measurement in MM by defining a set of outcomes most relevant for patients with MM and defining instruments to measure these outcomes. The outcome set was developed in 4 hospitals in the Netherlands. To ensure feasibility, panelists with expertise or experience in MM management across clinical specialties, patients and scientific researchers, participated in in-depth group meetings. Various information sources were used to identify a comprehensive list of outcomes. The list of potential outcomes was refined through consensus discussions by focusing on outcomes