Why the study?
Assistance required for daily activities in individuals with Type 2 and non-ambulant Type 3 spinal muscular atrophy is meaningful for quality of life and important to routinely assess.
The 22-item SMAIS-Upper Limb Module is a valid and reliable tool for assessing independence in daily activities for individuals with Type 2 and non-ambulant Type 3 SMA.
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SMAIS-ULM offers a candidate SMA upper-limb measure; leaves open prospective validation before clinical adoption.
Trundell et al. (2021) studied this question.
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