A qualitative study exploring access to online hearing loss information and support for adults with hearing loss

Introduction: This qualitative study explores the barriers and facilitators experienced by adults with hearing loss in accessing hearing-related information and services. Findings were interpreted using the Theoretical Domains Framework, which will be used to inform the design of a novel consumer-centred website-Hear4Health. Methods: A total of 13 participants (19-78 years) were recruited. Nine consumers with hearing loss participated in the focus groups, four of whom also served as representatives of consumer organisations. 12 of the 13 participants were subsequently interviewed (51.25 ± 20.35 years), including seven consumers, two consumer organisation representatives, and three who fulfilled dual roles. Results: Nine themes emerged from the interviews under seven theoretical domains: knowledge, environmental context and resources, social influence, beliefs about capabilities, beliefs about consequences, social/professional role and identity, and behavioural regulation. Barriers to access included the themes poor awareness of hearing loss, low-quality information, mistrust in the hearing industry, stigma, unrealistic expectations for hearing technologies, and deaf identity. Facilitators identified included peer support and the value of lived experience, informed decision-making, and self-efficacy. Discussion: These findings provide crucial insights for the development of Hear4Health. Grounded in the Theoretical Domains Framework, this research underscores the importance of addressing both individual and systemic factors to improve digital access to hearing healthcare and empower adults with hearing loss to make confident and informed choices.