Why the study?
Survivors of pediatric ECMO are at increased risk of physical, cognitive, and emotional impairments, but evidence on families' priorities in post-ECMO follow-up is limited.
Cohort (n=58)
No
p-value: p=0.034
Intro: Most pediatric patients requiring extracorporeal membrane oxygenation (ECMO) survive to hospital discharge.However, survivors are at increased risk of physical, cognitive, and emotional health impairments.The Extracorporeal Life Support Organization recommends neurodevelopmental assessment and support for recovery.Evidence reporting families' priorities in follow-up are limited.The aim of this study was to elicit caregivers' perspectives regarding vital components of and challenges to participating in post-ECMO follow-up care.Methods: An electronic survey was completed by consented caregivers of pediatric ECMO survivors who were <18 years of age at the time of ECMO and admitted to the neonatal, pediatric or https://doi.org/10.
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A 2023 study conducted a cohort in Complex congenital heart disease (n=58). Parenting stress vs. Lower parenting stress was evaluated on Planning abilities (Tower subtest of NEPSY) (p=0.034).
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