October 31, 2015Alzheimer Disease & Associated Disorders
Global Data Sharing in Alzheimer Disease Research
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Implication
Methodological report presents a federated data-sharing network for Alzheimer disease research, highlighting scalable solutions for cross-cohort analysis.
Key Points
- Identify structural impediments to global data exchange in dementia studies and introduce the Global Alzheimer's Association Interactive Network (GAAIN) as an integrated platform to resolve these challenges.
- Evaluation of key technological, regulatory, and ownership barriers currently restricting collaborative dementia research worldwide.
- Architectural design and deployment of the GAAIN platform, linking distributed cohorts, analytical toolsets, and computational hardware into a unified framework.
- GAAIN successfully establishes a decentralized network connecting investigators to clinical and biological records across thousands of participants.
- The infrastructure addresses data-governance concerns through owner-sensitive permission models while providing shared computational resources to accelerate discovery.
Cite This Study
Ashish et al. (2015) studied this question.