What is the problem and what can be done when data sharing challenges public legitimacy?

Q: What does this research mean for the field?

Public resistance to health data sharing with industry and across borders is driven by underlying concerns about profit motives and loss of control, which can be mitigated through responsive governance. Novelty: ClaimNovelty.SYNTHESIS. Consensus alignment: ConsensusAlignment.NEUTRAL.

Klaus Hoeyer; Lea Skovgaard

doi:10.1038/s41467-026-77006-0

August 21, 2026Nature CommunicationsOpen Access

What is the problem and what can be done when data sharing challenges public legitimacy?

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Key Points

To identify why health data sharing with industry and foreign entities challenges public legitimacy and to propose governance strategies that maintain public trust.
Synthesized findings from public surveys evaluating attitudes toward health data sharing with commercial entities and international partners.
Analyzed underlying socio-ethical drivers of public pushback, focusing on profit motives and control mechanisms.
Public resistance to data sharing is driven by concerns over corporate monetization and the perceived loss of control over sensitive health information.
Implementing responsive governance models that actively address public concerns is critical to sustaining institutional legitimacy and trust.

Implication

Survey analysis reveals public distrust in cross-border and industry health data sharing, highlighting the need for responsive governance frameworks.

Abstract

Surveys suggest that health data sharing with industry and across national borders challenges public legitimacy. We argue that this resistance reflects deeper concerns about profit motives and loss of control and provide guidance on responsive governance to ensure public trust.

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Cite This Study

Hoeyer et al. (2026) studied this question.

synapsesocial.com/papers/6a8c005bbca056c88e6df043 https://doi.org/10.1038/s41467-026-77006-0

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What is the problem and what can be done when data sharing challenges public legitimacy?

Key Points

Implication

Abstract

Discussion

Cite This Study

What is the problem and what can be done when data sharing challenges public legitimacy?

Key Points

Implication

Abstract

Discussion

Cite This Study

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