Qualitative interview study reveals key determinants of quality of life in adults with Down syndrome, suggesting that tailored support for autonomy improves wellbeing.
Key Points
To explore the self-perceived quality of life and lived experiences of adults with Down syndrome.
Qualitative semi-structured interviews conducted with adults with Down syndrome (N=5) in Norway.
Data collection supplemented by the Personal Wellbeing Index - Intellectual Disability scale.
Interview transcripts evaluated using reflexive thematic analysis.
Identified four core themes shaping quality of life: adulthood, autonomy, and independence; health experiences, self-care, and navigating barriers; pursuing dreams, ambitions, and daily joy; and freedom in leisure and personal choices.
Narratives demonstrated that fostering personal independence and self-care directly enhances daily happiness and overall life satisfaction.