Key result
The use of the Integrated Palliative Care Outcome Scale (IPOS) facilitated communication and revealed differences in symptom assessment between the pediatric patient, her parents, and medical staff.
Why the study?
Although the importance of palliative care in chronic heart failure is increasingly recognized, reports in the pediatric field remain scarce.
Case Report (n=1)
No
The IPOS tool is useful in pediatric chronic heart failure for assessing palliative care needs and highlighting differences in symptom perception between patients, families, and healthcare providers.
Answers are grounded in this paper and cite their sources.
IPOS may clarify needs in pediatric HF palliative care; leaves open routine use pending validation.
慢性心不全における緩和ケアの重要性は認識されつつあるが，小児領域での報告は少ない．今回Integrated Palliative care Outcome Scale（IPOS）の使用が，小児慢性心不全の緩和ケア評価ツールとして有用であった症例を報告する．症例は右室型単心室の診断で生後9か月にグレン術が施行された8歳女児．心不全増悪のため入院し，加療開始後も症状の改善が乏しく，緩和ケアの介入を開始した．IPOSは身体的・心理的・精神的項目の中で患児・両親・スタッフ間で評価が分かれる質問項目を認めた．特に身体的疼痛は，スタッフのつけた点数は患児と比較し高値であった．本症例を通して，IPOSを用いた緩和ケアの評価は，患者自身の評価を解釈するうえで患者の背景や性格を考慮する必要があるものの，患者やその親が必要としている事柄を医療スタッフが理解するうえで有用であった．小児心不全の緩和ケアにおいて，患者に病状を伝え，意思決定を支援することは重要であり，IPOSはその補助となる可能性がある．
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Hayashida et al. (2024) conducted a case report in Pediatric Chronic Heart Failure in Congenital Heart Disease (n=1). Integrated Palliative care Outcome Scale (IPOS) was evaluated. The use of the Integrated Palliative Care Outcome Scale (IPOS) facilitated communication and revealed differences in symptom assessment between the pediatric patient, her parents, and medical staff.
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