Postdischarge experiences and feedback of preterm NICU parents on continuous nursing

The transition of a preterm infant from the NICU to home is a critical and vulnerable period for families. While an “Internet+” based whole course management model holds potential for supporting this transition, it remains unknown how parents of preterm infants perceive, experience, and articulate their needs for such technology-enabled continuous care models in the Chinese context. In-depth qualitative research exploring parental perspectives on this topic is currently lacking. This study aimed to explore parents’ care experiences after discharge of preterm infants from the Neonatal Intensive Care Unit (NICU) and specific demands of parents of preterm infants regarding a continuous nursing mode based on the “Internet+” whole course management model for the post-discharge transitional care period. A descriptive qualitative study design was employed. Semi-structured in-depth interviews were conducted with 12 parents of preterm infants who were preparing for or had recently experienced their infant’s discharge from the NICU of a large tertiary hospital in China. Participants were recruited either 48–72 h before anticipated discharge (pre-discharge) or within one week after NICU discharge (post-discharge). Data were analyzed using Braun and Clarke’s reflexive thematic analysis to identify significant statements and formulate themes. Four main themes emerged from the data analysis: (1) The dual perception of discharge: relief intertwined with profound anxiety; (2) Navigating the multifaceted challenges of home care; (3) Functional needs and relational expectations for an “Internet+” Platform; (4) Balancing convenience with core concerns. Parents of preterm infants express a clear need for a continuous, personalized and trusted support system during the transition from NICU to home. An “Internet+” based model is perceived as a promising solution but must be carefully designed to address core demands for functionality, relational continuity with known healthcare providers and robust mechanisms to build trust and ensure safety. The first month post-discharge and key developmental stages are identified as periods of highest need.