Key result
The abstract outlines the aim to synthesize qualitative papers on the life experience of parents of adolescents with congenital heart disease, but reports no findings.
Systematic Review
This meta-synthesis aims to understand the life experiences of parents of adolescents with congenital heart disease to help tailor healthcare delivery for the whole family.
This review reports no findings; leaves open the synthesis of parental experiences to guide family-centered care in adolescent congenital heart disease.
Introduction: Congenital Heart Diseases (CHD) do not preclude the possibility to become adult due to the different innovations in medical and surgical treatments. The transition from childhood to adulthood is a complex process in the life of CHD adolescents, considering the consequences of their diseases and the need to be adherent with their follow-up indications. In this process, parents play an important role, being a landmark for their children, but the experiences of CHD adolescents' parents are little studied and the literature about their life experiences appears fragmented. Knowledge of life experience of CHD adolescents' parents is important to address a tailored and effi cient health-care delivery for the whole family. Therefore, the aim of this study is to synthesize qualitative papers of life experience of CHD adolescents' parents.
No takes yet. Share an insight, caveat, or question.
Federica Dellafiore (2017) conducted a systematic review in Congenital Heart Disease. Parenting an adolescent with congenital heart disease was evaluated on Synthesis of life experiences. The abstract outlines the aim to synthesize qualitative papers on the life experience of parents of adolescents with congenital heart disease, but reports no findings.
Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context: