Pulmonary arterial hypertension registries: past, present and into the future
Key result
Pulmonary arterial hypertension registries have advanced knowledge of disease epidemiology and treatment, with future success relying on the integration of multiple data sources and Big Data.
Population
Patients with pulmonary arterial hypertension (PAH)
Design
Review
Authors
Discussion
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Member takes
Implication
PAH care may draw on registry insights; leaves open Big Data integration pending prospective validation.
Structured PICO
P
Population
Patients with pulmonary arterial hypertension (PAH)
This review highlights the historical contributions and future potential of PAH registries, including the integration of Big Data.
Cite This Study
Weatherald et al. (2019) studied this question. Pulmonary arterial hypertension registries have advanced knowledge of disease epidemiology and treatment, with future success relying on the integration of multiple data sources and Big Data.