The needs of spouses caring for severely aphasic persons

This qualitative research aimed to identify and describe the needs perceived by spouses of persons with severe aphasia. The analyses revealed different categories of needs: (1) information, (2) need to acquire an effective mode of communication with the aphasic partner, (3) better interpersonal relationships, (4) need to be considered as a partner in the caring process, (5) support, (6) respite. These needs were not static but in interaction with one another. Moreover, they varied within a temporal axis and appeared at different time periods: within the acute hospitalisation phase, rehabilitation phase, and after the aphasic person returned home. Taking into consideration the needs of spouses of persons with severe aphasia requires an eco-systemic and interdisciplinary approach aiming for the social reintegration of the person with aphasia. Services should be developed in order to respond to the unique and individual experiences and needs of people affected by aphasia. Speech language pathologists play a pivotal role within this approach because communication problems are central to the consequences of severe aphasia.