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Evaluate baseline heart condition knowledge among adults with congenital heart disease in Central and Southeastern Europe and identify opportunities for care improvement.

April 16, 2025European Journal of Preventive CardiologyOpen Access

Adult congenital heart disease patients understanding of their condition in Central and Southeastern Europe: current status and opportunity for addressing shortfalls and for better care

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Evaluate baseline heart condition knowledge among adults with congenital heart disease in Central and Southeastern Europe and identify opportunities for care improvement.
Prospectively distributed a structured survey on heart condition knowledge to stable adult congenital heart disease patients across 14 countries from 2021 to 2022 (N=1650).
Verified patient survey responses against background medical information confirmed by their treating physicians.
Overall, 34.9% of patients (576/1650) lacked basic knowledge of their congenital heart disease, and 12.2% (146/1201) did not understand their previous cardiac procedures.
Patients significantly perceived their life expectancy as comparable to the general population (p=0.039).
Most respondents expressed a desire to improve disease knowledge (59.5%, n=962) and supported integrating digital health technology into their ongoing care (58.1%, n=929).

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Implication

Prospective survey reveals substantial knowledge gaps in adults with congenital heart disease, highlighting an urgent need for structured educational and transitional care programs.

Cite This Study

Brida et al. (2025) studied this question.

synapsesocial.com/papers/6a9930c752d74751e8200895 https://doi.org/10.1093/eurjpc/zwaf207

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Implication

Prospective survey reveals substantial knowledge gaps in adults with congenital heart disease, highlighting an urgent need for structured educational and transitional care programs.

Adult congenital heart disease patients understanding of their condition in Central and Southeastern Europe: current status and opportunity for addressing shortfalls and for better care

Key Points

Discussion

Implication

Cite This Study

Adult congenital heart disease patients understanding of their condition in Central and Southeastern Europe: current status and opportunity for addressing shortfalls and for better care

Key Points

Discussion

Implication

Cite This Study

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