“Resetting the mind”: carers’ perspective of delirium after hospital discharge

Background To develop better support for people with delirium and their family caregivers, we must first understand the experience and expressed needs of the family members who care for them after discharge from hospital. Objective The objective of this study was to understand the experience of caregivers of older people with a diagnosis of delirium, in the period after discharge from hospital. Methods Semi-structured in-depth interviews were conducted with the caregivers who looked after their relative with delirium at home after hospital discharge. Transcripts were analysed using reflexive thematic analysis. Results Twelve interviews were conducted with caregivers of older patients who had delirium during their admissions to a hospital in New Zealand. Three overarching themes were identified: 1. Dealing with a different person: there were changes in the person who experienced delirium which had an impact on the life of the caregiver. 2. Making sense of the experience: caregivers desired to make sense of hospital experiences and the changes in their family member. More information and the opportunity to share their story would help. 3. Seeking proactive support: caregivers wanted proactive healthcare, and support from family and friends. Conclusion Family caregivers witness major changes in people with delirium after discharge from hospital and require support to deal with the additional demands placed on them. We recommend education on delirium to both people with delirium and their family caregivers. Proactive follow-up services for people with delirium should emphasise opportunities for people with delirium and their caregivers to process emotions and experiences about the episode of delirium and help them make sense of associated distress.