“Communication, communication, communication,” Hartshorne, Hefner, Davenport, and Thelin's groundbreaking book, CHARGE Syndrome (2011), opens with these words and continues, “For 25 years, this has been our mantra when asked what it is that children with CHARGE syndrome need […] The biggest barrier to ultimate success for individuals with CHARGE is communication” (p. xi).
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Susan M. Bashinski (2015) studied this question.
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