What question did this study set out to answer?

To assess the feasibility and acceptability of the pediatric PROMIS measures by evaluating enrollment rates, attrition, and data missingness among children and adolescents in active cancer therapy or survivorship.

September 14, 2013Cancer Nursing

Feasibility and Acceptability of the Patient-Reported Outcomes Measurement Information System Measures in Children and Adolescents in Active Cancer Treatment and Survivorship

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Authors

JMJohanna C. MenardChildren's National PHPamela S. HindsGeorge Washington University Hospital SJShana JacobsChildren's National

Discussion

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Implication

Two cohort studies demonstrate high feasibility and low missingness for PROMIS measures in pediatric oncology, indicating their clinical utility across treatment and survivorship.

Key Points

To assess the feasibility and acceptability of the pediatric PROMIS measures by evaluating enrollment rates, attrition, and data missingness among children and adolescents in active cancer therapy or survivorship.
Assessed youth aged 8 to 18 years across two protocols: PROMIS I (a cross-sectional study of active treatment or survivorship) and PROMIS II (a longitudinal study tracking patients receiving curative treatment across three time points).
Evaluated feasibility and acceptability through enrollment rates, participant attrition, and missingness at the measure, item, participant, and assessment time point levels.
Enrollment reached 92.5% in PROMIS I (N=200) and 89.7% in PROMIS II (N=94).
Measure missingness was 8.0% in PROMIS I (unrelated to study variables) and 0.8% in PROMIS II, with item-level skips largely restricted to experiences participants had not encountered in the preceding seven days.

Cite This Study

Menard et al. (2013) studied this question.

synapsesocial.com/papers/6a9a49024012b5d2f7a2117c https://doi.org/10.1097/ncc.0b013e3182a0e23d

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Implication

Two cohort studies demonstrate high feasibility and low missingness for PROMIS measures in pediatric oncology, indicating their clinical utility across treatment and survivorship.

Feasibility and Acceptability of the Patient-Reported Outcomes Measurement Information System Measures in Children and Adolescents in Active Cancer Treatment and Survivorship

Discussion

Member takes

Implication

Key Points

Cite This Study

Feasibility and Acceptability of the Patient-Reported Outcomes Measurement Information System Measures in Children and Adolescents in Active Cancer Treatment and Survivorship

Discussion

Member takes

Implication

Key Points

Cite This Study

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