Key result
A Dutch national ACS registry for STEMI patients is feasible, demonstrating an in-hospital mortality rate of 5.2% and a 30-day mortality rate of 7.8%, though data completeness was suboptimal.
Observational (n=392)
Yes
The pilot phase of the Dutch NCDR ACS registry demonstrates the feasibility of a national STEMI registry, though improvements in data completeness are needed for future quality monitoring.
Dutch STEMI registry pilot supports national rollout; leaves open strategies to achieve complete data capture for quality benchmarking.
BACKGROUND: Clinical registries provide information on the process of care and patient outcomes, with the potential to improve the quality of patient care. A large Dutch national acute coronary syndrome (ACS) registry is currently lacking. Recently, we initiated the National Cardiovascular Database Registry (NCDR) for ACS in the Netherlands. The purpose of this study was to assess the NCDR ACS registry on feasibility and data completeness during a pilot phase of four snapshot weeks. METHODS: Between 2013 and 2015, we invited all hospitals in the Netherlands to record a predefined dataset for every patient that was admitted to their hospital with ST-segment elevation myocardial infarction (STEMI). Data were entered in an online case report form. All patient-specific data were encrypted to ensure privacy. RESULTS: A total of 392 patients were registered in 35 centres. The mean age of the patients was 64 years (SD 13); 8% of patients presented with signs of cardiogenic shock and 11% with an out-of-hospital cardiac arrest. The median time from first medical contact to percutaneous coronary intervention (PCI) was 75 min (IQR 51-108) and this was significantly longer for patients who presented at a non-PCI centre or to a primary care physician. In-hospital and 30-day mortality rates were 5.2% and 7.8%, respectively. The amount of completeness varied, with improved completeness over time. CONCLUSION: This report shows that a Dutch ACS registry is feasible with respect to STEMI patients. Data completeness, however, was suboptimal. Improved data completeness is warranted for the future.
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Hoedemaker et al. (2017) conducted an observational in ST-segment elevation myocardial infarction (STEMI) (n=392). STEMI care practice (NCDR ACS registry) was evaluated on Feasibility and data completeness of the registry. A Dutch national ACS registry for STEMI patients is feasible, demonstrating an in-hospital mortality rate of 5.2% and a 30-day mortality rate of 7.8%, though data completeness was suboptimal.
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