The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Isabel C. Hageman; Paola Midrio; H.J.J. van der Steeg; Ekkehart Jenetzky; Barbara Daniela Iacobelli; Anna Morandi; Cornelius E. J. Sloots; Eberhard Schmiedeke; Paul M.A. Broens; Francesco Fascetti Leon; Yusuf Hakan Çavuşoğlu; Ramon R. Gorter; Misel Trajanovska; Sebastian K. King; Dalia Aminoff; Nicole Schwarzer; Michel Haanen; Ivo de Blaauw; Iris A.L.M. van Rooij; Eva Amerstorfer; Holger Till; Stefan Deluggi; Emre Divarcı; M Fanjul; Araceli García Vázquez; Carlos Giné; Jan Gosemann; Martin Lacher; Caterina Grano; Sabine Grasshoff‐Derr; Stefano Giuliani; Stefan Holland‐Cunz; Wilfried Krois; Ernesto Leva; Judith Lindert; Gabriele Lisi; Johanna Ludwiczek; I. A. Makedonsky; C.M. Verhaak; Marc Miserez; Mazeena Mohideen; Alessio Pini Prato; Lucie Poš; R Škába; Carlos A. Reck-Burneo; Heiko Reutter; Stephan Rohleder; Inbal Samuk; Nagoud Schukfeh; Pernilla Stenström; Alejandra Vilanova-Sánchez; Patrick Volk; Marieke J. Witvliet

doi:10.1093/bjs/znae019

January 31, 2024British journal of surgeryOpen Access

The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

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Key Points

To evaluate clinical features, associated organ anomalies, surgical reconstruction approaches, and one-year functional outcomes in pediatric patients recorded in the European ARM-Net registry.
Retrospective multicenter cohort study analyzing clinical and surgical records from 34 European pediatric surgical centers for patients registered through March 2023 (N=2619).
Collected data on Krickenbeck malformation phenotype, screening for associated multiorgan anomalies, stoma placement, reconstructive techniques, and functional outcomes at one-year follow-up.
Perineal fistula was the most frequent phenotype (41.5%), and 68.3% of patients had associated congenital anomalies (most frequently skeletal, cardiac, and renal), which significantly delayed reconstructive surgery (median 4 vs 3 months, P < 0.001).
Reconstructive surgery was performed in 91.8% of patients with a complication rate of 25.5%, while temporary stomas were placed in 44.5% of patients with a 25.0% stoma complication rate.
At one-year follow-up, 55.4% of evaluated patients experienced constipation, and 88.3% underwent postoperative anal dilatations, with 41.9% reporting procedural pain.

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Implication

Cohort study reveals high rates of associated anomalies and constipation in pediatric anorectal malformation, highlighting the need for standardized screening and postoperative care.

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Hageman et al. (2024) studied this question.

synapsesocial.com/papers/6a9d5a9915f03e7590bf0c88 https://doi.org/10.1093/bjs/znae019

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The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Key Points

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Discussion

Cite This Study

The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Key Points

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Implication

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